Albany, NY – In a significant victory for medically fragile young adults across the state, New York State Governor Kathy Hochul has signed legislation spearheaded by New York State Senator Pete Harckham and New York State Assemblymember J. Gary Pretlow. The new law ensures that individuals aging out of pediatric nursing homes at 21 can continue receiving specialized care until age 36, addressing a critical gap in the healthcare system.
“Quality care for individuals who are medically fragile is both personalized and complex,” said Senator Harckham. “This law ensures these special young adults, who have endured so much, will no longer be forced from safe and nurturing facilities. I am deeply grateful to Assemblymember Pretlow, Senate Majority Leader Andrea Stewart-Cousins, and Governor Hochul for their roles in making this law a reality.”
The legislation (S.5969A / A.3674) codifies the practice of allowing medically fragile young adults to remain in pediatric care facilities past 21. It also provides Medicaid coverage equivalent to the rates for medically fragile children, extending benefits to adults between 21 and 53. This development comes as the state faces rising diagnoses and longer life expectancy for medically fragile individuals, highlighting a growing need for specialized care.
Assemblymember Pretlow emphasized the stability this law offers families. “By allowing young adults to remain in pediatric facilities until age 36, we ensure they receive the compassionate and specialized care they deserve,” he said.
New York previously approved the construction of two specialized care facilities for young adults, but delays and limited capacity left many without options. Currently, only six facilities statewide serve medically fragile adults over 21. The law will provide relief until new centers are operational.
Ari Friedman, co-owner of Sunshine Children’s Home and Rehabilitation Center, praised the legislation, saying, “This vital new law ensures continued care for medically fragile children as they transition into adulthood. It will have a lasting impact on families.”
The law marks a pivotal step in safeguarding vulnerable residents and ensuring continuity of care for those who need it most.